{"id":1504,"date":"2019-12-16T13:37:37","date_gmt":"2019-12-16T12:37:37","guid":{"rendered":"http:\/\/87.197.53.202\/wphirfolyam\/?p=1504"},"modified":"2019-12-16T13:37:37","modified_gmt":"2019-12-16T12:37:37","slug":"%ef%bb%bfjonak-lenni-jo-caro-darovania","status":"publish","type":"post","link":"http:\/\/www.oagvm.sk\/wphirfolyam\/?p=1504","title":{"rendered":"\ufeffJ\u00f3nak lenni j\u00f3 &#8211; \u010caro darovania"},"content":{"rendered":"<div style=\"text-align: justify;\"><span style=\"font-size: large; color: #ff6600;\"><strong>J\u00f3nak lenni j\u00f3<\/strong><strong><\/strong>\u00a0<\/span><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\"><br \/><\/span><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\">A\u00a0<\/span><span style=\"font-size: medium;\">j\u00f3t\u00e9konykod\u00e1s l\u00e9lekemel\u0151 hagyom\u00e1nya tov\u00e1bbra is t\u00f6retlen\u00fcl \u00e9l iskol\u00e1nkon. A Nagymegyeri Kereskedelmi Akad\u00e9mia di\u00e1kjai sz\u00edvesen cselekednek egy-egy j\u00f3 \u00fcgy \u00e9rdek\u00e9ben. Napjainkban egyre t\u00f6bb olyan \u00e9lett\u00f6rt\u00e9net \u2013 legf\u0151k\u00e9ppen gyermeki sors \u2013 kap nyilv\u00e1noss\u00e1got, amelynek f\u0151h\u0151sei k\u00fcl\u00f6nleges betegs\u00e9ggel k\u00fczdenek. D\u00f3ra \u00e9s D\u00e9nes, a k\u00e9t\u00e9ves ikrek Szentp\u00e9teren \u00e9lnek sz\u00fcleikkel, akiket nem ak\u00e1rmilyen pr\u00f3bat\u00e9tel el\u00e9 \u00e1ll\u00edtott az \u00e9let. Mindk\u00e9t kicsi SMA-izomsorvad\u00e1sban szenved. Egy nagyon ritka \u00f6r\u00f6kl\u0151d\u0151 betegs\u00e9gr\u0151l van sz\u00f3, m\u00e9gis a m\u00e1sodik leggyakoribb gyerekhal\u00e1lt okoz\u00f3 k\u00f3rnak sz\u00e1m\u00edt. Szlov\u00e1ki\u00e1ban jelenleg az SMA-s betegek sz\u00e1m\u00e1ra az egyetlen rem\u00e9nyt a Spinraza jelenti, amely a vil\u00e1g h\u00e9t legdr\u00e1g\u00e1bb gy\u00f3gyszere k\u00f6z\u00e9 tartozik. Nagyon fontos tov\u00e1bb\u00e1, hogy a kis betegek a gy\u00f3gyszeres kezel\u00e9s mellett folyamatosan fizioter\u00e1pi\u00e1n is r\u00e9szt vegyenek.\u00a0<\/span><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\">D\u00f3ra \u00e9s D\u00e9nes \u00e9desanyja iskol\u00e1nk volt tanul\u00f3ja, ez\u00e9rt k\u00fcl\u00f6n\u00f6sen fontos sz\u00e1munkra a seg\u00edts\u00e9gny\u00fajt\u00e1s. A di\u00e1kdiri is felaj\u00e1nlotta programj\u00e1ban, hogy k\u00f6z\u00f6s \u00f6sszefog\u00e1sra buzd\u00edtja iskolat\u00e1rsait.\u00a0 E nemes \u00fcgy \u00e9rdek\u00e9ben sz\u00e1mos di\u00e1kunk aj\u00e1nlott fel k\u00fcl\u00f6nf\u00e9le sz\u00e1raz s\u00fctem\u00e9nyt \u00e9s m\u00e9zeskal\u00e1csot, ami 2019. december 14-\u00e9n a csilizny\u00e1radi \u0151stermel\u0151i piacon ker\u00fclt elad\u00e1sra. Az itt megv\u00e1s\u00e1rolt s\u00fctem\u00e9nyekb\u0151l befolyt teljes \u00f6sszeg D\u00f3ra \u00e9s D\u00e9nes mindennapjait fogja seg\u00edteni. K\u00f6sz\u00f6net minden felaj\u00e1nl\u00e1s\u00e9rt!<\/span><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\"><br \/><\/span><\/div>\n<div style=\"text-align: right;\"><em><span style=\"font-size: medium;\">T\u00f3th M\u00f3nika<\/span><\/em><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\"><strong><br \/><\/strong><\/span><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\"><span style=\"font-size: large; color: #ff6600;\"><strong>\u010caro darovania<\/strong><\/span>\u00a0<\/span><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\"><br \/><\/span><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\">St\u00e1le viac a viac sa stret\u00e1vame s tak\u00fdmi \u017eivotn\u00fdmi pr\u00edbehmi, ktor\u00fdch hrdinami s\u00fa deti so \u0161peci\u00e1lnou chorobou. D\u00f3ra a D\u00e9nes ned\u00e1vno osl\u00e1vili dva roky. S\u00fa dvoj\u010dat\u00e1 a b\u00fdvaj\u00fa so svojou rodinou v obci Sv\u00e4t\u00fd Peter na ju\u017enom Slovensku. Trpia zriedkavou genetickou chorobou \u2013 spin\u00e1lnou svalovou atrofiou. T\u00e1to choroba pre nich v\u0161etk\u00fdch znamen\u00e1 ka\u017edodenn\u00fd boj. Veci, ktor\u00e9 s\u00fa pre in\u00fdch, zdrav\u00fdch \u013eud\u00ed prirodzen\u00e9, im prin\u00e1\u0161aj\u00fa \u0165a\u017ekosti a komplik\u00e1cie. Rodi\u010dia h\u013eadaj\u00fa pre svoje deti r\u00f4zne mo\u017enosti rehabilit\u00e1ci\u00ed, aby sa ich stav mohol aspo\u0148 trochu zlep\u0161i\u0165. Lie\u010dba a cvi\u010denia stoja rodinu nemal\u00e9 peniaze, aj preto to maj\u00fa naozaj ve\u013emi \u0165a\u017ek\u00e9. Navy\u0161e, progn\u00f3zy pre tento typ choroby nie s\u00fa najlep\u0161ie.\u00a0<\/span><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\"><br \/><\/span><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\">Na z\u00e1klade n\u00e1vrhu \u0161tudentsk\u00e9ho riadite\u013ea \u017eiaci Obchodnej akad\u00e9mie vo Ve\u013ekom Mederi usporiadali dobro\u010dinn\u00fa zbierku vo forme such\u00fdch pe\u010d\u00edv &#8211; medovn\u00edk, lineck\u00e9 pe\u010divo, ktor\u00e9 boli pred\u00e1van\u00e9 14. decembra 2019 na trhu prim\u00e1rnych v\u00fdrobkov. S plnou v\u00fd\u0161kou vyzbieranej sumy pom\u00f4\u017eeme D\u00f3re a D\u00e9nesovi. \u010eakujeme!\u00a0<\/span><\/div>\n<div style=\"text-align: justify;\"><span style=\"font-size: medium;\"><br \/><\/span><\/div>\n<div style=\"text-align: right;\"><span style=\"font-size: medium;\"><em>Monika T\u00f3thov\u00e1<\/em> \u00a0<\/span><\/div>\n<p><P><\/P><br \/>\n<div id=\"metaslider-id-1487\" style=\"max-width: 600px; margin: 0 auto;\" class=\"ml-slider-3-23-0 metaslider metaslider-flex metaslider-1487 ml-slider\">\n    <div id=\"metaslider_container_1487\">\n        <div id=\"metaslider_1487\">\n            <ul aria-live=\"polite\" class=\"slides\">\n                <li style=\"display: block; width: 100%;\" class=\"slide-1496 ms-image\"><img width=\"600\" height=\"450\" src=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-01.jpg\" class=\"slider-1487 slide-1496\" alt=\"\" loading=\"lazy\" rel=\"\" title=\"doraesdenes-01\" srcset=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-01.jpg 600w, http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-01-300x225.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/li>\n                <li style=\"display: none; width: 100%;\" class=\"slide-1497 ms-image\"><img width=\"600\" height=\"450\" src=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-02.jpg\" class=\"slider-1487 slide-1497\" alt=\"\" loading=\"lazy\" rel=\"\" title=\"doraesdenes-02\" srcset=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-02.jpg 600w, http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-02-300x225.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/li>\n                <li style=\"display: none; width: 100%;\" class=\"slide-1498 ms-image\"><img width=\"600\" height=\"450\" src=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-03.jpg\" class=\"slider-1487 slide-1498\" alt=\"\" loading=\"lazy\" rel=\"\" title=\"doraesdenes-03\" srcset=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-03.jpg 600w, http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-03-300x225.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/li>\n                <li style=\"display: none; 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width: 100%;\" class=\"slide-1501 ms-image\"><img width=\"600\" height=\"450\" src=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-06.jpg\" class=\"slider-1487 slide-1501\" alt=\"\" loading=\"lazy\" rel=\"\" title=\"doraesdenes-06\" srcset=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-06.jpg 600w, http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-06-300x225.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/li>\n                <li style=\"display: none; width: 100%;\" class=\"slide-1502 ms-image\"><img width=\"600\" height=\"450\" src=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-07.jpg\" class=\"slider-1487 slide-1502\" alt=\"\" loading=\"lazy\" rel=\"\" title=\"doraesdenes-07\" srcset=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-07.jpg 600w, http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-07-300x225.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/li>\n                <li style=\"display: none; width: 100%;\" class=\"slide-1503 ms-image\"><img width=\"450\" height=\"600\" src=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-08.jpg\" class=\"slider-1487 slide-1503\" alt=\"\" loading=\"lazy\" rel=\"\" title=\"doraesdenes-08\" srcset=\"http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-08.jpg 450w, http:\/\/www.oagvm.sk\/wphirfolyam\/wp-content\/uploads\/2019\/12\/doraesdenes-08-225x300.jpg 225w\" sizes=\"(max-width: 450px) 100vw, 450px\" \/><\/li>\n            <\/ul>\n        <\/div>\n        \n    <\/div>\n<\/div><\/p>\n","protected":false},"excerpt":{"rendered":"<p>J\u00f3nak lenni j\u00f3\u00a0 A\u00a0j\u00f3t\u00e9konykod\u00e1s l\u00e9lekemel\u0151 hagyom\u00e1nya tov\u00e1bbra is t\u00f6retlen\u00fcl \u00e9l iskol\u00e1nkon. A Nagymegyeri Kereskedelmi Akad\u00e9mia di\u00e1kjai sz\u00edvesen cselekednek egy-egy j\u00f3 \u00fcgy \u00e9rdek\u00e9ben. Napjainkban egyre t\u00f6bb olyan \u00e9lett\u00f6rt\u00e9net \u2013 legf\u0151k\u00e9ppen gyermeki sors \u2013 kap nyilv\u00e1noss\u00e1got, amelynek f\u0151h\u0151sei k\u00fcl\u00f6nleges betegs\u00e9ggel k\u00fczdenek. D\u00f3ra \u00e9s D\u00e9nes, a k\u00e9t\u00e9ves ikrek Szentp\u00e9teren \u00e9lnek sz\u00fcleikkel, akiket nem ak\u00e1rmilyen pr\u00f3bat\u00e9tel el\u00e9 \u00e1ll\u00edtott az &#8230; <a title=\"\ufeffJ\u00f3nak lenni j\u00f3 &#8211; \u010caro darovania\" class=\"read-more\" href=\"http:\/\/www.oagvm.sk\/wphirfolyam\/?p=1504\">Olvass tov\u00e1bb<span class=\"screen-reader-text\">\ufeffJ\u00f3nak lenni j\u00f3 &#8211; \u010caro darovania<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[50],"tags":[],"_links":{"self":[{"href":"http:\/\/www.oagvm.sk\/wphirfolyam\/index.php?rest_route=\/wp\/v2\/posts\/1504"}],"collection":[{"href":"http:\/\/www.oagvm.sk\/wphirfolyam\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.oagvm.sk\/wphirfolyam\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.oagvm.sk\/wphirfolyam\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.oagvm.sk\/wphirfolyam\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1504"}],"version-history":[{"count":1,"href":"http:\/\/www.oagvm.sk\/wphirfolyam\/index.php?rest_route=\/wp\/v2\/posts\/1504\/revisions"}],"predecessor-version":[{"id":1505,"href":"http:\/\/www.oagvm.sk\/wphirfolyam\/index.php?rest_route=\/wp\/v2\/posts\/1504\/revisions\/1505"}],"wp:attachment":[{"href":"http:\/\/www.oagvm.sk\/wphirfolyam\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1504"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.oagvm.sk\/wphirfolyam\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1504"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.oagvm.sk\/wphirfolyam\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1504"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}